In June 2006, the Food and Drug Administration first notified healthcare professionals and the public about the risk of NSF following exposure to gadolinium. Leon had his first MRI with the contrast agent in 2003. He was diagnosed with a spinal tumor, had surgery and had annual MRI follow-ups.
1st and 2nd MRI
I was told the contrast agent was gadolinium based and didn't think twice about it; I didn't have any allergies or reactions. I had the MRI and they pulled me out for about a minute, injected me through a vein in my arm with the contrast agent and repeated the MRI.
3rd MRI
Same as before but right after the injection, while I was in the hospital, my legs felt numb and started to burn. Again, I didn't pay much attention and just thought it was related to the surgery.
4th MRI
I had it in 2005 and felt really awful this time. I had a bad stomach ache and diarrhea. And my body felt really hot; it was very strange because I had never felt this way before. I informed the technician and administration at the hospital that something was wrong. 'Was too much used?' I asked. 'Nothing we did was done wrong with you,' they replied.
At that time, I didn't think much about gadolinium but I suspected it had to be something related to the MRI—because of the timing. Right away after the injection I also got a shortness of breath. Then a few hours later, I was running to the bathroom.
5th MRI
In 2007 I had no immediate problems but my legs were falling asleep, especially at night. I noticed the veins were puffed up, like I was getting varicose veins. I have low blood pressure and my veins are hard to find when blood is taken or I need an IV drip. It has always been a problem to find veins in my hands and arms. Very weird but again, I didn't put two and two together until the 6th MRI.
6th MRI
One month ago, I had a bad backache again. This time I went to another hospital—St. Joseph's--because my primary physician is affiliated with it and I had to go there for insurance reasons, I had no choice. I asked the technician if there were any side effects from the contrast agent. 'If you don't want it, we won't do an MRI today,' he said. I couldn't afford not to have it so I acquiesced.
The whole procedure this time was different. This time I had an IV in my hand and it was left in my hand during the first MRI, then they pulled me out a bit and gave me the contrast agent. I felt it because my hand got cold. Then they 'washed' my veins with saline.
I went home, everything was fine. The next morning my hand hurt—it was swollen at the wrist and at the IV location. It was red and hot and painful to touch. I called the hospital and they said there couldn't be anything wrong, they followed procedure and I should come to ER if I thought something was wrong. I called my doctor and made an appointment with her three days later. She didn't know much about it but said it would just go away.
It got worse so I phoned her a few days later. I asked her why my hand is swollen and veins puffing out, like they were plugged. It felt like I was developing blood clots; my veins felt hard and bumpy. It spread from my wrist to my elbow. Why? Again, she said wait two weeks.
I called the hospital again. The MRI technician told me that I had a higher dose of contrast agent with gadolinium than usual but they do this often and it shouldn't be a problem. And she added that if I did have a reaction, it would happen immediately and my kidneys would fail. And it happens only to those who have weak kidneys. I told her my kidneys aren't functioning at 100 percent.
Could I develop NSF? My doctor said they don't know and again, she just said it would go away. On what basis was she forming this opinion? If she is so confident it would go away, why does my arm hurt? I told her it was too coincidental with the timing of the gadolinium injection.
I contacted a radiologist at St. Joseph's and got his opinion. I showed him my arm and veins. 'Doctors don't know much about this disease,' he said, 'and chances are, this is not NSF but you have problems with your veins and it is likely because of the gadolinium.' The radiologist also told me that NSF could develop a year from now. His concluding remarks: be patient and hopefully NSF won't develop.
Ten days ago
My co-workers and friends ask me what is wrong with my veins. Swelling has gone away but my veins are puffing out in new locations. And I feel bad at night. When I urinate my kidneys hurt. I am terrified that the problem is moving from my wrist to other parts of my body. The vein injury might spread to internal organs—could anyone assure me this won't happen? Nobody can give me an answer. Now I am worried about organ failure.
Will these symptoms go away or will they kill me? There is no way for me to know—nobody understands enough about contrast agents. But I do know that my veins are having trouble in different locations of my body so it must have an effect on internal organs. Doctors don't know, they don't have any answers and they don't want to talk about it.
I will never allow anyone to inject me with a contrast agent again.
READ MORE MRI HEALTH RISK LEGAL NEWS
Currently, multiple lawsuits have been filed against the makers of gadolinium-based contrast agents and the law firm Levin Papantonio has taken an active lead in the Gadolinium litigation. The firm has filed multiple cases and it is aggressively pushing forward with these cases. As well, attorney Troy Rafferty of Levin Papantonio will hold one of four positions on the Executive Committee of the Plaintiff's Steering Committee, and will serve as Co-Lead of the Plaintiff's Steering Committee.
READER COMMENTS
Ruth Schwarzbach
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Doctors response when I questioned him about not asking me about my health was”oh”. He’s ignoring me I understand why. There’s so much more. But my age is an issue recovering. I mostly stay home due to Vertigo I’m afraid of having car accident. And of course I understand no response due to not wanting to acknowledge responsibility for not informing me as the FDA requires patients be told of possible issues. My life is upside down right now. It’s incredible reading the stories I just read of all the things that people went through. It’s seems as though there’s no recourse. I can’t believe I can’t get any medical people to help me. Even my ENT doctor agreed I should have 2nd MRI doctor wanted me to have. After reading all about the negative things after the fact I told doctor no I wouldn’t have another MRI I don’t want any more health issues. That’s all for now. I hope someone will respond and give me some hope. I had to cancel going out of town for holidays and I’m so disappointed.
Ruth
RHONDA LEORA MOORE
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Karen
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Gloria Thomforde
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cindy
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Previously had MRI contrast for migraines, all strapped in and ready to go. They gave the contrast and I had the immediate need to vomit and could not get out of the machine fast enough.
... I will do everything I can NOT to have contrast again.
Michelle
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Pen
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Has anyone tried any form of Chelation treatment to remove this drug from the body?
Does anyone know of any other treatment or drug to remove this drug from the body?
My interest in this issue, a family member that suffered after MRI and surgery. Mentally she was never the same, after sharing this experience i found 5 our people with simular experience family members who's health declined rapidly and went into alzheimers or dementia.
Kesha from Dallas
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Right now, I still feel nauseous and have a horrible taste in my mouth. I'm sipping on a Sprite trying to help the feeling go away. Needless to say, I never want to have contrast imaging done again!!!!!
Kathryn Iandoli
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Catherine
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Marissa
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jen
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Mike
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She asked what was the matter, and I told her I was going to throw up. THEN she told me nausea was a common side-effect of the contrast used!
I'm a big, strong 68 year old guy, and not prone to whining. But just a little warning about that "instant" nausea would have been nice! THEN wait a couple minutes to see if any side effects happen before continuing with the MRI. She said there was no rush after I insisted on a few minutes to recover from that shot.
It took maybe four minutes of lying there, breathing slowly through my mouth, before the nausea mostly passed. I was not a happy camper having to go back in the tunnel feeling that way. Twelve LONG minutes later my brain scan was completed. I took my time getting vertical and walking.
Then I drove home and looked up "contrast used with MRI"- and arrived here.
Best of luck to all out there with medical issues.
ana
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dawn from uk
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LH
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I had an MRI with contrast injection about 4 hours ago and feel absolutely fine. This is the 3rd MRI with contrast (the first one I ever had, they didn't use contrast) in about 4 years, and I have never had a problem.
It feels a little bit cold going in which is an odd sensation, but I honestly don't think I've ever had any actual side effects. I don't meant to try and rubbish what anyone else on this comment thread is saying, but if you have been told you need an MRI and don't have any medical reason not to use contrast if requested (e.g. pregnancy, kidney problems, etc) then do not let a website like this put you off.
I imagine 99% of people don't have any problems, and I'm very sorry for any of you here that do.
For my MRI scans of my brain, where I have very small complex tumors, the dye is essential to get as clear a scan image as possible - I've seen my scans and the first one is nowhere near as clear as the ones since then with contrast used.
I'm in the UK by the way, so they certainly aren't pushing me to use the contrast injection to make more money as I'm not paying for the treatment in the first place.
Hope this helps someone, and I hope you all recover soon.
Jane Talbot-Weiss
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Anyway, I have had stress angina for many years and the Doctore wanted to do this dye scan. So unwillingly I filled in the form and studied it carefully, even asthma excema was not a contraindication. Therefore i felt i was made to go through with it. At the time my bladder felt hot and I had a strange taste in my mouth but nothing else. Then a few hours later suddenly I felt horribly itching and out of breath, hot and could hardly speak. My husband rand emergency Dr and he went to the hospital to pick up steroids and anti allergy pills.Ever since I've had severe pain in my arms and legs esp after any exercise. It is stopping me from moving.I have bruses under my skin that was never there before. I used to dance and swim now I have put on 2 stone and feel my life is over. I take 2 amytriptyline every night often diazipam. The doctors do not accept it was the dye.....Although one asked about Shingles and seemed to think I should have said, but nothing was on the form about shingles......
Paul Prince
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DougName
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Marie from Seattle
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As soon as they put the contrast in I had immediate horrible lower back pain. It felt like back labor (I have had six babies). The pain was HORRIBLE. After forty minutes of it I was willing to die. They put me in the ER next door and I was given two shots of dialuted which barely touched the pain.
The doctors said they have never seen this before. My back is still killing... but at a pain level of six-seven... not ten like earlier.
Does anyone have any suggestions?
Bonnie Carey
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Cyn
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Delie Hawkins
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Diane
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Alan Baptiste
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sf
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Anthony hines
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erik
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lynnCampbell
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Alicia
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housemouse
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Gabriela
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Ambika Prasad
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Lisa
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Valerie Carpenter
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T from va
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days now and my arm is hurting really bad. My fingers feel swollen and hand feels numb. Not sure what to do now :(
DJ002
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Jade
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Ruejy
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Towards the end of my 2015, I went to the ER because my feet were swollen and I wanted to know what was happening as this could mean heart or kidney issues.
I explained to them that I was allergic to dye and I had an hemolytic condition so I need to be aware of everything that I am being given. I was admitted and after blood work etc. I Fell asleep. They shook me to tell me they were taking me to have some scans done. Next thing I know they pumped this solution through my veins. I felt an horrible intense hotness and a feeling as if my bladder was about to explode during the procedure.
I went home feeling VERY ill!!! They discharged me saying they found nothing wrong. The site of the IVA/injection began swelling up and hurting!! I went to see my doc a week later. He was clueless so he said I may need antibiotics and wrote a couple prescriptions. Long story short. My lower extremities weakened til I could not stand on my own, swelling in different parts of my body, tightness and thickening in my skin, at this very moment my belly is swelling up !! I have gone to the ER 3 times and got no help, so I started researching and found this site and a couple others, thank goodness! Others can testify that they have had bad experience too. The doctors act as if I am crazy to think my symptoms are from the procedure. I have always had a flat stomach, no I look practically pregnant. I am going to administer some Benadryl to myself. It feels hopeless!!!! I have ALL the symptoms of NSF. Smh. Because of these lazy uncaring doctors. If I survive, I will be filing a law suit, it has been weeks and I am SUFFERING. My children are suffering!! They are scared of what might be the outcome.
Patricia Nadworniak
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ts
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Maria from montreal
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When was finished after about 45 min (I felt very claustrophobic and I never ever had that feeling,)
I had very very abdo pain like my belly was 100 kilo
Crampes, every minute a pain 8/10 ,I had to drive about 30 minutes in that situation, I felt dizzy nauseaus, the technician told me I can drive, no problem.
At home I stard vomiting vas the horrible sweet liquid I had , I do not understand how it was steel in may stomach after 3,5hours . Crampes , every minute, and diarrhea all that night. Can't go working today.
Had anyone else something like this?
I will not be able to have it again eventual.