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“I’m on a Transvaginal Mesh Blacklist”, Says Canadian TVM Victim

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Toronto, ONLike thousands of women who had a transvaginal mesh implant for urinary incontinence or pelvic organ prolapse, Mary trusted her doctor. “He said it was the best thing since sliced bread and it would fix everything,” says Mary. But she has been suffering horrific TVM side effects for more than two years.

“My doctor also told me that getting this mesh implanted would involve a simple day surgery,” she adds. “I had it for urinary incontinence because my bladder dropped after I had a hysterectomy. I figured, what’s not to like? After the surgery, they said I was ‘good to go’ so who would argue?”

As it turns out, what Mary’s doctor and the hospital staff told her couldn’t have been further from the truth. Mary had to wear a catheter for several weeks and she had to work during that time. “After that I had home care to help me self-catheterize, which I did every four hours for another three months,” Mary says. “I had a helluva time trying to convince my doctor to do a bladder ultrasound because I couldn’t pee, I felt ready to burst all the time. They found from the ultrasound results that I had a 48-oz. pop can of urine in my bladder!”

Still Mary’s doctor had no answers as to why she was suffering, and he definitely had no solution.

“I’ve been fighting for more than a year to get this transvaginal mesh removed,” says Mary, exasperated. “I saw a few other doctors, but as soon as I said that I had a TVT sling implanted, it was like I was put on a blacklist - nobody wanted to even address the thought of having it removed. In a sense I do know why: I think they are afraid of getting involved in a transvaginal mesh lawsuit.”

Mary finally found a surgeon in Toronto who agreed to take it out, but she has to endure several more months of suffering: surgery is scheduled at the end of this year. Meanwhile, she is taking Percocet for the pain and antibiotics for one infection after the other. All these meds are adding to her health issues.

“The pain killers work for a while until you get used to them,” she explains. “My pain management specialist is banging his head against the wall, not knowing what else to do. And I’m so close to losing my job from taking off so many sick days. Last year I took 12 weeks in total and already this year I have taken 21 days. Some days I just can’t crawl out of bed, it seems to intensify. It hurts even when I don’t move.”

Mary found the surgeon through a friend - she had her transvaginal mesh removed recently but Mary says she still has pain due to nerve damage. “My friend is feeling much better now that the mesh is removed; apparently it had wrapped around a nerve and that has caused irreparable damage. She can tolerate it now with pain management. But how long can that go on for?”

Mary has filed a TVM claim against the transvaginal mesh manufacturer. She is hopeful that Canadian TVM lawsuits will result in taking TVM off the market, both in Canada and the US. As of February 2013, three Canadian provinces, including Ontario, have court documents filed with the possibility of launching a class-action case representing hundreds of Canadian women.

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READER COMMENTS

Posted by

on
Marlex Mesh implanted in 1990 for rare obturator hernia repair. Came out of hospital with sciatic injury and have suffered since. Now mesh has moved migrated and possibly eroded, and doctor says it has to be removed. Every article or blog I read is about transvaginal mesh. Was told there would be a doctor in Toronto with mesh removal experience. WHO? Experience in complete removal for my rare situation? Can anyone suggest a mesh removal surgeon in Toronto?

Posted by

on
From all that I have read we need to get it all out. My specialist tried to remove it all finally on her 3rd surgery but unfortunately she cut a piece of one side last year trying to remove a nodule of scar tissue. Now the 1.5 cm piece that remains has migrated and she says she doesn't feels she has the expertise to remove it. Plus the end anchors are there ns I want them out too. The other doctor that removes mesh in Vancouver is going away and I won't get to see him till next August and I don't know if he can remove what is left. It doesn't seem they have access to any imaging device to see the mesh like the 3 doctors in LA who are skilled at removing mesh - Raz and the other 2 who work together - Milkos and Moore. Raz is booking consults for next June and the surgery will cost $30 - $50,000.

It sounds like all the symptoms are similar. People who have problems continue to suffer until it is all out. There is often low grade infections and pain from that and then immune problems and of course the nerve pain that is from the mesh and from the surgeries. I have been told to live with the pain and that more surgery will cause more pain but I know that the mesh is causing my body all this pain and fatigue and I need to get it out and then I will deal with the nerve pain and the chronic mesh pain syndrome or maybe it will all go away then.

Unfortunately, as I read and learn, I really think the only solution is to go to the States and get it out with the doctors who are most skilled. They need to get all the bits out to be thorough.

The LA doctors use Translabial ultrasound to see the mesh. They do have this ultrasound in Canada and I am having one in a few weeks to see if it will pick up all the mesh remaining. I am not sure if they use the ultra sound during surgery in LA but I don't think have this technique in Canada.

Not sure what to do.

Posted by

on
I'm a victim of the vaginal mesh and I'm from Canada, Ontario.Ever since that horror was inserted in me in 2008, I've had trouble from the start.My urinary incontinence was worst and shortly after I developed Stool Incontinence,I have a lot of bladder infections, and I have pain in my leg and groin.I've been told that I will need a Hip Replacement, this year(2015).My life has changed, dramatically, I rarely go out because of both incontinences.What a Life...It's truly Hell and worst,It's hard, emotionally, physically and mentally...I'm gonna be 64yrs.old this year and I'm a widow.I don't want the mesh to be removed, because a lot of victims say that we're gonna need a lot of surgeries after the removal...never mind, because I'm already having a hip surgery and I don't want any more.surgeries Mostly, I want to know if women will have to wait 10 years to get their money???I'll be dead by then...I know someone who is in the Vioxx lawsuits.Tt's been 12 years and still have not received a penny.Instead of waisting time and money to go to courts why don't they force those incompetent manufactures to settle, now and send our money, NOW...

Posted by

on
You don't seem to here of to many husbands boy friends ect my wife had a TVM she had nothing but problems from day one.She to had to self cath her self after leaving the hospital and I had to rush her back to the Emergency a couple of times the worry and the hurt you go through as a husband is unreal so I can't even think of what my poor wife and others like her is going through.my wife to was at the point where no Drs wanted to believe what she was telling them with a few of the Drs giving stupid comments I got so upset I wrote the Health Minister it seemed that the Drs then got the message that this was real. My wife had a Partial removal after begging to have the Mesh taken out as the Dr couldn't or Wouldn't even try to take it all out as it was way to dangerous to do so.So now she is going to UCLA to see if the Dr there can remove the rest and who knows how much reconstructive surgery is going to be needed after that. So now my wife is taking so many meds due to having this TVM implant it's ridiculous she is taking so morphine it's very very unhealthy for her and other meds on top of that as her husband I'm pissed this was supposed to have been a simple procedure to help her but it's ended up being a night mare for the whole family especially my poor wife.To all the husbands and boy friends family's ect it's hard I know hang in there for your loved one and give lots of love and support and understanding.To those in Government in Canada help
Get this going in Canadian Courts.
Help the lawyers help get settlements for these poor woman most of these women are middle aged and can't work in there lives again they have family's kids bills and we all know one income just can't cut it anymore living in Canada get the picture they can't work help them.

Posted by

on
Likewise!!! I had a doctor who said if I don't remove it a can lose kidney function due to not emptying at all!!! I need a surgeon in San Francisco area! I'm in so much pain every single minute! My poor husband! Thank you and I hate to say it but it feels good to know we are real and not alone in this fight through pain! Talk about worst recovery of my young life!

Posted by

on
This article sounds like it could have been written about me. As sad as it is to say I am glad to have found someone else dealing with being "blacklisted". As I thought I was the only one. I am already part of a class action lawsuit and am getting the run around. I go from one doctor to the next only to hear that everything is alright, or be referred to another doctor/specialist, or told to go back to the doctor that implanted it.
I am literally losing grasp on reality, losing my mind. I think my family believes I am a hypochondriac. But I KNOW my body and can't take the pain and not knowing what is going on for very much longer.
If someone ANYONE could direct me to a doctor that can help me and doesn't think I am crazy I would be so grateful. To my fellow sufferers I wish you the best of luck.
Please e-mail me if you can help at catloverntx@yahoo.com

Posted by

on
Is Mary sure the doctor in Toronto can get it ALL out; including what is known as the arms or the anchors? I have had two partial removals, and I a scheduled for a full mesh removal on 9/26. Dr. Raz at UCLA told me the worst thing other than having the mesh implanted that I had done was having partial removals. He said it is then like looking for shrapnel in there. I am traveling from Mississippi to California to get a full removal done, as there are no doctors in my area who can do it.

If you have found one, please share his/her name as there are dozens and dozens of ladies in Canada that might benefit from this knowledge.

Thank you,

Suzanne McClain

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